Wednesday, December 31, 2008

Focus! Just Focus!

OK, just breathe. Breathe in, breathe out! It's all a matter of focus. Well not ALL, but a large part is the way you look at things. It can't change that I hurt, and it can't change the fact the I am tired, more like exhausted and that I cry at the drop of a hat. Or that the medication makes me sleep for hours. But, I am trying to keep a positive outlook and am hoping that it will help.

This is the woman that never cried. Not even if I smashed my finger with a hammer. I didn't cry! But now, now that I am facing an illness that will forever alter my life! Yeah, I cry! I cry allot!

I went to the physical therapist today. I really like him and I think it will be good for me to go to Physical Therapy and Occupational Therapy twice a week. It will keep me focused on something positive. Focused on pro-action and not sitting at home feeling sorry for myself. He said to me. "It doesn't matter what we call it, because we don't have a diagnosis yet. What matters is that we are focused on the problem, on what is actually happening and doing something about it"! I like that. The big problem is that I have falling issues. I fall down when I should be ok. I fell off the stairs. Part of the problem is that I hurt myself!

I am glad that I am finally doing something about this! I can't change what that MRI found! And, I can't change what is going on inside my body. But, I can change what my attitude is about it. "What does not destroy me makes me stronger. - Friedrich Nietzsche" I can't let this destroy me. I have always considered myself a strong woman. I guess we will find out just how strong I really am! Do you know what makes me strong? God for one, two I am stubborn, three I have truly great friends. Even if I just met those friends. I do have some pretty cool friends.

Danni

Tuesday, December 30, 2008

And the doctor said.......

Tomorrow I go to the physical therapist. I have to be there at 9:00 am and I am not good at mornings at all. It is nothin' for me to sleep until noon. I just can't help it. It is very hard for me to get to sleep before 2:00 am. Physical therapy kind of freaks me out. It's making this thing just a little bit more real. And allot more freaky!

I guess you could say that I am almost to panick mode. I know this man who has multiple sclerosis. He can't move, he can't speak, and he just lays there. Not being able to move or communicate is like being stuck in a very tight tunnel!! And, I am clastrophobic! I keep praying that I will wake up from this nightmare. But, every morning when I wake up it is still here and I still am having a very hard time talking! It's been said that I was pretending to be sick so I could get out of responsibilities! Oh man, if that was true, then I could make it STOP!!!!!!!!!!!!

I feel like I am being cheated out of my life. There are so many things I want to do and this death grip is closing tighter and tighter! It feels like it is getting harder and harder to breath.

When I write, no matter how bad it is getting. I try to find something positive, because if I don't, I will get bogged down in the negative so bad that it really will get me. So, what is positive about potentially having an illness that will eventually put me in a nursing home. People don't call and check on me now, what makes me think they will if I go to a nursing home! I can be honest here, because I really don't think anyone reads it. So, how much time do I have left? This has come on pretty quickly. I never saw this coming! I probably have at least ten to 20 years before I can no longer function. With physical and occupational therapy maybe more. I intend to fight. There is no way I am going to sit down and just take it. I have a few books to write! I had intended on public speaking but I am not sure now. I have such a communication problem. I want to at least KNOW my grandchildren!

It's gonna be ok. I know this. God has never left me yet, and he won't leave me now. All things work together for good for those who are called according to his purpose. And, I believe that I am called. I just had no idea how much! I had no idea that I would cross the bed of coals, the bed of nails, raging rapids, and swing through the forest. Oh God help me now!

Danni

Losing a diamond

Have you ever lost something that was important to you? Something that was so important that you didn't think you could live without it? YET, you didn't even know it was that important! Because you never thought about it. You took it SO for granted that it never occured to you that you might lose it. Like maybe your voice? I'm not talking about getting a cold or laryngitis and losing your voice. Knowing that in a few days you will get it back. No, I'm talking about losing your voice for good.

I have lost my voice. Yes, I can still talk but what I say does not make sense to most people. Sound is coming out, but everyone is saying "huh" allot! Like I have said before, I have Trigeminal Neuralgia. There is another illness that many people with Trigeminal Neuralgia also have and that is Multiple Sclerosis. I have never seen losing my voice as a possibility with Trigeminal Neuralgia. But, it comes up on the list for problems with Multiple Sclerosis. I have many symptoms that do not come up on the TN list, but they come up on the MS list. Go figure!

AND, I have lost my voice to the point that it is hard to communicate. I talk just as much or more than I did before, quite possibly because I am afraid that if I don't say what I have to say I may wake up and my voice is totally gone and I won't be able to communicate. No one has a treatment for this kind of ailment. I woke up one morning and I was having a little bit of trouble talking. Within a few days my voice as I knew it was gone!

My life as I knew it is gone. Bipolar Disorder was a walk in the park compared to this mess. You can always say that there is always someone worse off than you are. You should count your blessings. That someone is my step dad. I call him Papa. He has Multiple Sclerosis and has had for nearly thirty years. I went to see him today and I could hardly make him understand what I was trying to say to him.

Maybe they have caught it early enough that they can treat me. Maybe they have caught this early enough that I can learn to grieve before I lose my voice. Maybe I can learn to live with these terrible illness's and it will be ok. It's got to be ok. God has his hand on me. I know that. He gave me a ministry eight years ago. Maybe, just maybe since I can't be out running the countryside, maybe I can get on this computer and get the writing done that I need to do. Maybe I will learn to cry.

Danni

Saturday, December 27, 2008

The Read and the Well Read

My son and I went to the mall today. He wanted to turn in some video games and get some new ones. I just wanted to eat. I don't normally go dutch treat with my son, but today was one of those days. After he was done at the video game store we went to the bookstore for a minute. On the way out we stopped to talk to the store manager. My middle daughter and the store manager are cousins. We stopped and talked for a little while. He told us what books he had been reading lately. It kind of surprised me that he reads as much as he does, since he is amongst books as much as he is. On the way out I got to thinking. Maybe I should ask this man if he would read my book in progress, and see what he thinks? Hmmmmm!

I am sure that what he reads is a little different from what I write. I know this guy, I've known him for a long time. But, I can say that I don't know him WELL! But still. A manager of a bookstore cannot possibly read every book in his store unless it is in his genre. My books are probably not in his genre.

But, I still think I might drop by the bookstore and just pick his brain a little bit. He would definitely know what sells too. Yet, I take this to yet one more level and I really begin to think about my work. My writing. One of the things that bothers me the worst about getting sick is that I have such a hard time talking. I sound like I have peanut butter or something in my mouth and I am trying to work around it. But, I can still type! Even though I feel like I have wasted so much time!

I am determined not to let this illness, disease, whatever it is that you want to call it. I am not. NOTE, I am NOT going to let it get me down. I have to admit that the word suicide has crept into my mind more than once over the last nine weeks. The pain is excruciating and now my mouth. My voice! It has let me down! I have done a little bit of public speaking and I really liked it. If this is the only mode of "speaking" that I have left I intend to use it as much as I can, while I can. I am praying for the best and preparing for the worst.

With my hands bothering me the way they are I don't know how much longer I can type. This morning I was making breakfast for my youngest son and I had gotten a small bowl out of the cupboard to make honey butter for our pancakes. My hand could not hold onto it's grip and the bowl slid from my hands and hit the floor. I was cursing and crying all at the same time because I knew what had happened. Little electric shocks went through my hands all morning and are still going on tonight and I lost my grip, there is nothing I can do about it. Later in the afternoon I picked up a ziplock bag of change that I had been saving so that I could get a few groceries and the same thing happened. The ziplock bag slipped from my hands and hit the floor.

With things like this going on. I need to get the books written that I want to write. I pray that something can be done for me. But, the words Multiple Sclerosis loom over my head and for the first time in years I am able to cry. Not just cry, but sob. I am so emotional. Take your adversities and use them. You never know how much time you might have left. You may not die, but your mouth may be closed and your hands silenced forever. And for a writer, that is a death sentence in itself!

Whatever it is that you have set goals for yourself to do. DO THEM! Don't wait! An accident may snuf your life out in an instant. Your health may take a serious turn for the worse. You never know what the future brings. Never ASSUME you will be here ten minutes from now. If you need to say I love you. Say it! If there is something you want to do. DO IT! Be in your kids lives. They won't remember the big fancy house the most. They will remember YOU!

And your spouse? Well, the spouse may get 1/2 of that big fancy house in the divorce proceedings, and when there is a divorce no one wins. There is never enough to go around then. So, protect your marriage as tho your very life depends on it. Because it does! Protect your health because your children are relying on you to be there. Protect your health because you can't take it back when it is ruined! It's done!

Danni

The day after!

It is the day after Christmas and all through the house...!!!
Well, I really don't feel like poetry today, but I'll be honest with you. I don't feel like much of anything! This illness might just be getting the better of me. It does not bother me whenever I sleep. I wake up feeling just fine, and actually talking halfway clear. Then, as the day progress's my speach gets worse and my face and head hurt more and more. Unfortunately that progression only takes a few minutes!

There is this man that is after me. He wants me to be his girlfriend. I think I've been pretty clear about how I feel, but he won't give up. Yesterrday he got mad at me because he was literally drinking with his 16 year old daughter. I got pretty upset about it and told him how I felt and hung up on him. He called back today and told me to look in the mirror and at least he could talk straight. I know I shouldn't care about what he said, but it hurt me pretty bad.

I have no feelings for him and have chosen to no longer take his calls. It is the safest thing for me to do. I can't help it that I have a hard time talking. The thing that upsets me the most is that I wanted to be a public speaker!!!

I guess that I can still write is a good thing in itself. I have a message that I want the world to hear. The diagnosis of Bipolar Disorder hit me pretty hard, and I have learned to live with it. I think that I have learned to live with it pretty successfully. But, this one is going to take me awhile. My voice going bad, the electrical shocks in my hands and stumbling and falling that I can't seem to control are hitting me pretty hard.

It will be ok. It has to be! My voice needs to be heard, even if it is only a whisper. And I will move, even if its in a wheelchair!

Danni

Monday, December 22, 2008

A Voice Silenced

I am a writer! I have written a book, several small books and over 600 devotionals. I quit writing about three years ago. I think I just got too busy for it.

I believe that God has a plan for my writing. And that I am the one who has walked away from it for quite awhile. Now, here I am, I am sick so I am at home a whole lot more than I was. And, I have lost my voice. It is very hard for me to speak correctly. It feels like my tongue is thicker than it should be. I slur my words and the person I am talking to asks me to repeat myself many times. I wanted to be a public speaker. There is no way I can be a public speaker now. I don't know if my voice will ever come back or not.

I have a quote on my email that reads "My voice needs to be heard, even if it's only a whisper"! I wrote that! I still have a voice. It may only be a small one, but it is still my voice. And, that is what I write, a whisper. I don't know who reads my blogs. But, I can still say what I need to say through the written word. Here I don't stumble over my words and slur them. What I say is clear as a bell.

My life and my body have changed dramatically over the last couple of months. It came on very quickly, then I fell and hurt my hip and that makes things worse.

I don't believe that God made me get sick so that I would sit down and write. I believe that I GOT sick, and this is what I am going to do with it. And, I think God agrees with my decision. I am going to take this opportunity and write!!! I think the book will get started after the first of the year.

I don't know who reads this, but if there is something you need to be doing. Just do it. Don't wait for a major life changing experience to do it. God allows things to happen and we don't know why, they just do. But, I believe there is always something to be learned from it.

Danni

Friday, December 19, 2008

The Top Ten!

Have you ever had one of those days that just topped the top ten! So frustrating that you wanted to go back to bed and start over! Maybe even throw things, it made me wish that I had a punching bag! Well, today was one of those days.

I had to get my granddaughter to school and back home. She has perfect attendance and she was late! I am on medication that makes me really tired and I sleep allot. In the afternoon, I knew that I would fall asleep so I set my alarm so I could get her off the bus. I never heard that alarm and awoke to my daughters voice wanting to know why I didn't get my granddaughter off the bus! Then I had to drive to my daughters house and get my granddaughter, half awake!

Then I went to Wal-Mart to get a few things and I didn't have enough money on my debit card. I was sure how much money I had!!! Oh geez! I cried all the way back home.

What do you do with bad days? Well, the best thing I can say about them is that "this too shall pass"! I cried, yes I did! I'm sure I'll have another bad day again. But, the other side of that coin is, "I'll have another good day again too"!

Danni

Thursday, December 18, 2008

Deck the %$#@! Halls!

OKOK, I'm not a total screwge, well maybe!

Christmas is a really hard time of year for me. My children are married, except the younger one! They have their own lives and it's just pretty hard for me to get into the whole thing. The last time that the kids were all home was about six years ago. I had five Christmas tress in the house! Garland all around the living room and over 1000 of those little Christmas lights! It was beautiful!

Today, I am struggling to put up my tree. It is a small tree. I plan to put a bunch of lights on it and some small ornaments. Shrug! I am having a hard time caring. Since no one will probably read this blog, I can be totally honest here! Hey, I need to be totally honesty anyway!

Since I have been sick things that need to happen just haven't! I care, I really do care! I want my energy back.

I went to have an MRI done last night. Twenty minutes of lying totally still with my eyes closed. Mind you I am clastrophobic! Here I am singing to myself trying to keep from literally freaking out! YIKES! Well, I won't know the answers til' possibily January. That freaks me out too. I just want this thing done! Finished! Etc.!

OK, this is me. Really me! My totally honest feelings. I am scared of the possibilities. I am afraid of being in pain the rest of my life! And, I am afraid that this might be tumors, worse yet I am afraid it might be multiple sclerosis. OK, there, I said it!

My step dad has MS. He and I are pretty close and I usually go see him on a pretty regular basis. But, since I found out about the possibilities here with my own illness, I can barely go see him. I can't look at him. His illness never bothered me. I took it in stride. But, now, I guess I see myself!

So, deck the %$#@! Halls!

Good night!

Danni

Wednesday, December 17, 2008

Life Goes On!

I've been sick for a while now. I am trying really hard not to let it get to me. But, it does! I have an illness that is very painful. Something is pushing on the nerves that govern my face. I feel like I have typed this over and over. There are allot of people who really care for me and who have showed it over and over. And, I really appreciate them! But, there are those who don't seem to care at all. I went to dinner with one of the ones who really should care about me allot. But, it didn't feel like they cared at all! I felt invisible.

All day it has bothered me. I wanted to pick up the phone and yell at them! Scream, don't you see it? Don't you care that I hurt? But, I haven't! I know all of the words! I know that I should not feel this way and I know that in the end that would not solve the problem. Am I better than that? No, probably not! I just have more self control. It's not that I am a "better" person!

Should this person acknowledge that I hurt and be more attentive to it? Yeah probably! Do I have a hundred reasons why they don't? Yeah I could come up with a whole list of reasons why. It's not they don't care it is simpyly that they have interests in another areas that do not include me or my pain. So, am I going to let this eat at me until I am angry and upset! No, not at all. Yes, it bothers me. This person should be a little more concerned about me. This person is not the only one. but, they don't, none of them do! I have friends who do, this one just doesn't! I shrug my shoulders, so be it! Shake it off, and don't worry so much about it. I won't say don't worry about it at all, just don't worry about it! Forget about it! Move one! Life goes on!

Picking your nose!

I got an email from a friend of mine just now. It was talking about telling your kids not to run in the house. There were two pictures in the email and one showed a little boy with a skinned nose. Yep, that can happen if you run in the house or outdoors or wherever. For me, that can happen simply by walking carefully down the stairs!

It was the next picture that was so incredibly disturbing. This Mom was sitting on a chair, holding her child and consoling him. That was not disturbing! The child hard a FORK UP HIS NOSE! And, I don't mean up his nose picking the boogers out, he had this fork up his nose and all the way through the top of it!

THAT was disturbing! I think the most disturbing part of all is that he was not crying and his morther was not upset. It had to be photoshopped somewhow. But, I guess there is a lesson to be learned here. Yes, running in the house is a bad thing! Forks belong on the table, and if you shove your fork so far up your nose that it comes out the top its a good thing to GO SEE THE DOCTOR!!! Geez, OK, I'm off my soapbox! Yikes!

OK, I'm calm.

Danni

Tuesday, December 16, 2008

Blogging and communication

I am relatively new to the art of blogging. I have heard about it for a long time, and just haven't gotten around to trying it. Is this the new way of sending smoke signals? I can just imagine standing on a hill and sending up puffs of smoke to tell your neighbors you are coming for dinner! Now, all you have to do is go to your computer and send an email or your phone and send a text. Even the phone is an antiquated piece of equipment. At least the one that hangs on the wall is!

Communicatin is a wondersful thing. Without communication the world would cease to exist. Without communication no war would ever end. Without communication doctors could not do their job and people would die. Without communication our roads would be a jumbled mess. Sometimes that communication comes in the form of one bad finger, but that in itself that is a form of communication. No books would be read and no famous speaches would be heard.

So, I think I am liking this form of communication! Since I like to write and you like to read, well then! Let's communicate!

Danni